Saturday – April 11th, 2015 – Second Bag Change

I went into this bag change in a much better place than the first time. I was going to take a shower before I changed the bag but as I was emptying I noticed a tiny leak in the top left side of the bag. As the adhesive thins away and the days go on it becomes more of a possibility for that to happen.

Just make sure you keep an eye on it and change  as soon as you notice a leak. I sat down on the chair we placed in the bathroom and with my home nurse (mom) at my side, we got to work. In short, things went better,  much better. It took only about 30 minutes, if that. There was some slight redness on my skin above my stoma. Nothing too serious but I put a small amount of powder on to make sure it wouldn’t get worse. All of these supplies will be mentioned and given to you before you leave the hospital. You’ll feel confident you have everything you need. I did notice a tiny line that kind of circled around the top of the stoma that looked like a bruise. For the rest of the day I mentioned a couple of times that my stomach felt a bit more sore than usual around the stoma. I figured it was because it was just because I was pressing around the area more than usual. It was nothing terrible or unbearable, just a bit more than usual. I hopped in the shower and this time took a shower that actually was refreshing. I was still a bit careful getting everything wet, for no reason other than I was just nervous because it was the first time getting the bag so wet. I got into some comfortable clothes, walked downstairs (by myself) and found a place next to Osty on the couch. I continued eating and drinking and let time do it’s healing.

Wednesday – April 8th, 2015 – Saturday – April 11th, 2015 – Living with the Bag

This blog post is going to be less about my day to day and more about my progressions and things I am coming to learn about living with the bag.

Everything I am eating is going down good, pain-free, and is being digested well. There is zero stomach pain from anything I have eaten thus far. Pancakes, french toast, steak, pasta, grilled cheese, turkey, pizza, lasagna, a little chicken parmesan hero, salad, mozzarella sticks, tuna fish, donuts, chocolate shakes, ice cream, cookies….you get the point. I am eating. I am still on 10 mg of prednisone and as all of you fellow prednisone takers know, you  have to taper off the the drug. I figure that is the main reason why I have such a big appetite. Normally I would hate this, but given the circumstances, and amount of weight I need to gain back, I’m not complaining. It’s just important for all of you food enthusiasts to know, eating will be okay. Granted, I haven’t gobbled down a Big Mac or anything terribly unhealthy, but all the foods I have eaten, have not given me any problems. The soreness is dissipating. My stomach now is less sore and more weak. All of my abdomen muscles are gone and it’s far too soon to work on getting those muscles back. Therefore, as I said, the getting up and down from lying down is difficult. I haven’t sneezed yet but laughing, though still uncomfortable, doesn’t hurt like it used to. Tiny coughs are okay, but if a big one sneaks up on me, that still sucks. Walks are getting easier and a bit longer each day. What I have noticed is that when my bag gets full it gets heavier….duh. Because of this, standing with a full bag feels a bit uncomfortable. Only because it’s pulling the bag down a bit more than if it was empty and you can obviously tell as it tugs on your skin. After all, the bag is just sticking to my stomach by a strong adhesive. This week every day I am getting a little better. My head, 95% of the time is in a good place. I’ve caught up on a lot of movies I’ve been meaning to watch and just finished the book, “The Girl on the Train.” I think more than anything now, I’m going insane. Perhaps a shade of Jack Torrence up at the Overlook Hotel, but don’t worry my parents are safe….for now. (I can only speak for myself, Osty seems to be keeping very quiet these days..)

Stuffing my Face
Stuffing my Face

The only other thing I’ll add is that sleeping is still a problem. I’ve been taking a Xanax to help, and it has a little, but I’m still having trouble getting right to bed. It’s a bit frustrating, especially because I know sleep is important in the healing process. Hopefully with time, and being able to maneuver a bit more, that will get better.

The weekend arrives. Day four since I’ve changed my bag. I could probably wait until Sunday, but I’m in a good place mentally, so I decide today would be the day. I brought some water into the bathroom with me this time… you know, just in case I pass out again.

Tuesday – April 7th, 2015 – First Bag Change

I woke up wide awake. It’s better to change the bag in the morning, to avoid more stool coming out as you’re changing the bag. Of course it’s out of your control, but because it’s morning, there’s less going through your system at that time. The plan was to change my bag and then take a much needed shower. My home nurse (mom) did a great job getting all the supplies organized in the bathroom. We also got a chair for me to sit on in the bathroom. I was nervous. She was nervous too. I took a seat and we got underway. As I slowly removed my bag from my stomach I was overwhelmed with what was to come. It smelt bad. I had changed the bag three times prior in the hospital, but keep in mind, those three times were one day apart and when I was not eating as much as I was up until then. It had been four days since the last time I changed the bag. Meaning it was  a lot more dirty than the last time. My stoma was completely covered with stool. This grossed me out. I still was not very comfortable touching the stoma itself. There are no nerve endings in the stoma and it is normal for it to bleed a bit as you touch it, but it’s a hard thing to get used to. I certainly wasn’t comfortable yet. The nurse assured me cleaning the stoma wasn’t as important as cleaning the skin around it. I knew that, but with the bag off, and because it was my first time, I wanted to do a good job cleaning everything. It took me a good 30-40 minutes to clean my stoma, the skin around the stoma, and remove all the adhesive tape off my skin. That was only the first step. The adhesive remover was a very important thing to have. It works wonders. Warm wash cloths for the skin around the stoma and wet paper towels I feel work best for getting the job done. Soap is not necessary, and not recommended. No need to add anything that can aggravate the skin or stoma area. We continued on. Measuring the stoma, re-cleaning and drying the area, and getting the bag on. It was done. I did it. It took over an hour though. Way too long. It was a success, but it took way too long. We also changed the bandage and cleaned around the stitches where the incision was. As I sat on the chair in the bathroom, relaxing after what felt like a full days work, I started to feel dizzy. I’ve gotten dizzy and lightheaded many times in the past, but I’ve never fainted. My mom came back in and I mentioned I felt dizzy. Next thing I know, I woke up to my mom anxiously calling my name and my dad rubbing my head in his underwear (he had just gotten out of the shower.) I passed out. I don’t know why. It must have been the adrenaline. It was all over, the bag was on and done, but I passed out. I’ve never fainted before. My ears were ringing and the color had left my face. I was more upset for scaring my mom. She was freaked out. I was sitting up and because of that when I fainted I was trying to fight it and I think it looked more like I was having a seizure. Oops. Sorry, mom. She was under enough stress as it was and I didn’t like worrying her more than normal. Half alert, I mentioned I was going to skip the shower, and decided to join Osty back in bed. A few hours of sleep got me feeling much better.

Sunday – April 5th, 2015 – Monday – April 6th, 2015

Easter Sunday. I woke up to my friend peeking her head in to check in on me. Her and my sister were leaving later on in the day and I was bummed knowing soon they’d be gone. I was pretty sore when I woke up today. I took another Oxy and fell asleep for another hour. My mom made me pancakes, bacon, and some toast. Mmmmmm. By this time, I’ve been eating hospital food for the past three weeks so probably anything would have tasted like heaven, but believe me when I say, my mom is a killer cook. I stuffed my face, made my way to the bathroom to empty my bag and get on with my day.  Here’s another emptying your bag tip. At first you’re going to be very sore. Any movement will seem impossible. Because of this, make sure everything you need is in arms length. I had a little end table positioned right next to the toilet that I had the wet wipes on. I also folded a small hand towel and laid it on the very back of the toilet bowl. You want to sit as far back as possible so it makes it easy to empty. Also, make sure you throw some toilet paper into the toilet before you empty the bag, to avoid water splashing. Next. It’s poo. It’s going to smell. Thankfully, it’s 2015, and they have thought of everything. May I introduce to you, Poo Pourri. That’s right. Poo Pourri. Genius. You spray about 5-6 times into the bowl and it really covers the odor. It works. It works real well. And the best part is they have travel size bottles that fit in your pocket. I recommend this.

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Saturday – April 4th, 2015

I woke up, ordered breakfast, and managed to finagle my way up and out of bed, and to the bathroom… all by myself! I emptied my bag for the first time sitting on the actual toilet. It went well. A little messier than I had anticipated, but certainly something that I knew would get easier with time. I was still super sore and tender. Laughing, coughing and sneezing  were all things that had to be avoided at all costs.
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