i fell asleep last night at 3 am. I cannot seem to fall asleep. I woke up at 9, suprisingly awake given the amount of sleep I got. I’m still tapering off the prednisone, and am currently on 2.5mg for a few more days. It’s really killing my joints. Only in the morning really. My fingers today are the worst and my right elbow and hip. As the day progresses it gets better, but really drives home the fact that this medicine is terrible and needs to be out of my system.

 I took a shower and then sat down in the bathroom for my next bag change. I decided to go with the original bags, though see-through, definitely more comfortable. It took a bit longer to get this bag off because the piece that sticks to my skin is a bit larger meaning more to peel off of my skin. No fun. Also, my stoma was a bit….active…throughout the whole changing process and I had to allow for that. (I was pooping a lot) Usually by changing in the morning you can avoid that but today was a different story. On the whole my skin looked pretty good. There was a tiny bit of red on the right side of the stoma that I thought might be a bit of irritation so I used some powder to try and fix that. All in all id say it was a successful change even though it still is taking me about 30 minutes on average. Practice makes perfect. I ate some breakfast and took a nap for an hour. It’s rainy and crappy here today so I haven’t been out for my daily walk. Just being a bum sleeping and watching Netflix. 

It finally cleared up so I took a walk around the cul de sac before dinner. I’m noticing I’m moving around much better than I have been. Pulling myself up is still tough. Not painful, just tough. Again, no muscles there. You don’t realize how much you use those ab muscles until they’re not there. Its 9 now so I plan to watch some TV and get to bed soon. I’m feeling tired so hopefully tonight won’t be a repeat of last night. Tomorrow is my last day of lounging before I attempt to get back to work. Getting up and out will be a good step in the direction of getting stronger!

Until next time, thanks for keeping up and I’ll be back soon!