Monday – April 27th, 2014

It’s been 4 weeks since surgery. The days following surgery seemed to drag. I remember thinking a few times that I just wanted to fast forward a few weeks so I wouldn’t have to deal with all of this. Now here I am. I’m a little less tired than I was last week.. granted it’s nine and I am in bed. I am definitely moving around much better. Bending up and down and lifting my legs are still tough… not because of soreness or pain, but because I am just weak. Also, it feels a bit uncomfortable to bend down, especially when I have a belt on and it’s right up against the bottom of the bag. I am still waiting on the stealth belt. No real problems to report bag wise. Everything seems to be going okay. I weighed 111 pounds at my 2 week check up… I weight 120 pounds now, at least that’s what the scale at my house reads. (not 100% reliable) The point is, I am getting some weight back. It’ll just have to take time unfortunately. I have been waking up at night at least once to release the air from my bag. I am now realizing that there’s no reason to get a bag without a filter. With a filter you can avoid having to open the bag to release the air. With a filter it takes care of it for you and is odor free. A huge plus. Why they even have bags without the filter is beyond me, but is certainly something I wish I knew before I ordered 20 bags without one. My nurse (mom) is going to call for me tomorrow and see if we can get a sample of a bag or two with the filter. That would save me a lot of middle of the night wake-ups and trips to the bathroom to let the air out myself. We’ll see how it goes. I am ready to be back to normal. I also have not tried to drink yet. After work tomorrow will be my first experiment. One Captain and Coke. Wednesday I’ll do two, thursday three, and so on until my bag explodes, or until I do… I’ve got to test my limits. Also, if I can’t swing a golf club soon I’ll certainly lose my mind. The weather is getting real nice here… I need to play. My next bag change isn’t until Thursday morning.. the day of my trip to Boston. I’ll check back in then! Oh, one more thing.. tonight I dumped out a bottle of LIALDA and 6MP. That sure did feel good. Also, I’ve been off Prednisone for a week, and I’m feeling real good!

Wednesday – April 22nd, 2015- Home At Last

It has been exactly 40 days since I left my house in Myrtle Beach. It’s crazy to think how much has happened in that 40 days. I have been at work for the past three days. I get in around 930 and have been leaving later than I had anticipated I’d make it- around 4:30-5. Getting up and down is super tiring and by three I’m pretty wiped. Today the bag was more “apparent” than I feel it usually is and I am not sure why. It feels heavier to me, or just pulling more even when it’s empty. I had ordered a stealth belt a few weeks back and am hoping that arrives soon, I feel like it will be a big help. For those of you who are unfamiliar with the stealth belt, there is a link to their site in the side bar on the right, check it out.

After a busy day at work my parents met me down in Myrtle and took me and a buddy to dinner. They also had a car load of clothes, supplies, etc… all things that I’ve accumulated over the past month. After dinner I headed home, driving for the first time, My movement still isn’t great and I had to rely on my mirrors more than I’d like to admit, but it was fine. The getting in and out of the car is the hardest part.

My buddy helped me bring all my stuff in and I finally made my way to the couch. I could have fallen asleep right there. It sure is nice to be home though. We chatted for a bit, watched a little TV, but by eight I was wiped. I headed upstairs, put a few things away and hopped into bed. After I finish typing this up I am going to throw an episode of Homeland on (I’ve got some catching up to do) and then I am going to fall into a very deep sleep. Although I am progressing nicely, I just wish it was happening faster. Yes, I am getting stronger, Yes I am getting healthier, but the zero muscles in my stomach thing is getting old. Getting out of my chair is still a chore. Laughing or coughing, still impossible. Do you know how frustrating it is to not be able to laugh hard? Also I am still more sore than i’d like to be around my stoma. Everywhere else on my stomach is okay. Bending down to put my socks and shoes on simply put, sucks. I know you can’t just gain back 40 pounds over night. I know that I was extremely sick a month ago and time is the only cure to all of this. But I am ready. I head to Boston for a Bachelor party a week from tomorrow, and I hope to be 10 times better than I am today. I am being optimistic. I haven’t told Osty I’ll be leaving home for a few days, so keep that between us, that’s not an argument I feel like having tonight. God, I have to get a life. Okay, until next time….oh wait, I also saw a cool shirt today on an ostomy site with the phrase, “LIFE TAKES GUTS” I thought that was cool.. Clever line. Okay, I’ll report back in with how I am doing in a day or two. Thanks for reading and obviously HAPPY EARTH DAY.

Monday – April 20th, 2015 – Three Weeks Down

It has been three weeks since surgery. Although after a long day and a stressful night, it’s pretty crazy to think how far I’ve come. Let’s start at 8am. A song by Grace Potter and the Nocturnals woke me up for my first day of work in almost a month. I was excited to get out of the house (sorry mom….and Osty) I had a pile full of stuff ready to go. It was the first time I had to actually wrap a belt around my waist…. not the most exciting thing. Always make sure you have extra supplies with you at all times god forbid something goes wrong. You never know. I got to the office a little after 9. It was nice to see people I hadn’t seen friday and everyone was super nice and supportive of me being back. A lot of, “take it easy’s” and “don’t over do its” were sincerely mentioned by more than one person. I am lucky to have a super cool boss as well that has been great through this whole thing. Work can be a stressful thing, especially the news. I was able to focus on my recovery and not worry about work related issues this whole time. That was really great. He didn’t burden me with much today. He understood I might have to duck out early if I was too tired or just wasn’t feeling up to being there. I made it until 4:30. But boy was I wiped. My mom drove me to work because I still don’t have the strength or flexibility to confidently drive a car, but that will change in the next day or two. Mom arrived at 4:20 to pick me up. After a whole day of walking around and getting up and down I was tired. A little sore, but more tired than anything. The getting up and down part is the hardest. It just takes a lot of work to pull yourself up with a still very weak abdomen.

By the time we got home I was pretty exhausted. Overall there were no major hiccups. Everything went to plan. A successful first day of work. All the supplies I had ordered had arrived today. Included in the shipment was a wrap. Something meant to wrap around the stomach keeping the bag in place allowing for my support and comfort. We decided to try that out after dinner….this was a mistake. Let me try and explain…

As time goes on I am learning and understanding more about different pouches and why some are better than others. two piece pouches consist of, yes, you guessed it, two pieces. One being the bag itself, and the other being the “flange” or circular piece that has the adhesive part on one side that sticks to my stomach with a hole in the middle for the stoma. I take the protective piece off the sticky end and carefully lower and stick to my skin. (stoma goes through center hole) Now, I take the bag that has a hole the same size of the flange and place that over the stoma and snap it to the flange. That, in the simplest of explanations, is a two piece system. Now I can safely go to the bathroom into the bag, without anything getting on my skin. The other bag I tried last week, that I did not like as much because of the amount of sticky adhesive was on the flange, had a much better “snapping” mechanism. On that bag you just had to snap the top and you could twist the bag vertically or horizontally as you saw fit. (without having to take apart the two pieces and exposing the stoma. This pouch, for those of you wondering, was the colopast pouch. The one that I am currently wearing, a Hollister Brand, must be snapped off. Here is why I am explaining this to you. Thie wrap that I got today, requires that the bag be put horizontal so that it can easily be tucked into the wrap. That means I have to unsnap the flange and pouch. I was a bit uncomfortable doing this for a few reasons. For one thing, I am still a bit sore there and pulling the pouch off the flange will require a bit more force than I am comfortable applying at this time. Second, anytime you play around with that part, where the adhesive is, you cause more likelihood of a possible leak occurring. Thirdly, it could be messy if I didn’t do it quickly, and it was my first time so I was unsure how it would go. I took the bag off, a bit slow at first and was nervous once it was off that I wasn’t going to get it back on. It stressed me out and aggravated me. I finally got it on.

At this point I am tired. Almost a full days work, certainly the most I’ve exerted myself physically and mentally (besides a few jumbles and Jeopardy) in a long time, I was in no mood for this. The wrap to a second to get figured out. Where to snap what and how far and where the bag went. Finally I got it. When all was said and done. I wasn’t happy. I didn’t feel more comfortable or more support at all. In fact I was more paranoid now because although I could probably sleep on my right side I didn’t like the fact that I could easily look down and see if my bag needed emptying, or if there was a leak. Moral of the story… this wrap wasn’t for me. It isn’t to say it isn’t for everyone. I just don’t like the whole horizontal bag thing. Not yet at least. I have been searching forums online and haven’t found a decisive yes or no on whether it is even possible to empty a bag that is on sideways. If you have any insight into this, feel free to comment below! Another belt I have on the way, a “stealth belt” (link is on the tab to the right) is supposed to be much better and I believe my bag can stay vertical and I just tuck it up and into the belt. We will see. I got into bed feeling frustrated. Quite frankly I am ready for these four months to be over. I just want this all to be behind me. We’re all entitled to a few bad nights right? I’m going to bed. Day two of work tomorrow, let’s hope I wake up a little bit stronger and without any leaks.

Saturday – April 18th, 2015

i fell asleep last night at 3 am. I cannot seem to fall asleep. I woke up at 9, suprisingly awake given the amount of sleep I got. I’m still tapering off the prednisone, and am currently on 2.5mg for a few more days. It’s really killing my joints. Only in the morning really. My fingers today are the worst and my right elbow and hip. As the day progresses it gets better, but really drives home the fact that this medicine is terrible and needs to be out of my system.

 I took a shower and then sat down in the bathroom for my next bag change. I decided to go with the original bags, though see-through, definitely more comfortable. It took a bit longer to get this bag off because the piece that sticks to my skin is a bit larger meaning more to peel off of my skin. No fun. Also, my stoma was a bit….active…throughout the whole changing process and I had to allow for that. (I was pooping a lot) Usually by changing in the morning you can avoid that but today was a different story. On the whole my skin looked pretty good. There was a tiny bit of red on the right side of the stoma that I thought might be a bit of irritation so I used some powder to try and fix that. All in all id say it was a successful change even though it still is taking me about 30 minutes on average. Practice makes perfect. I ate some breakfast and took a nap for an hour. It’s rainy and crappy here today so I haven’t been out for my daily walk. Just being a bum sleeping and watching Netflix. 

It finally cleared up so I took a walk around the cul de sac before dinner. I’m noticing I’m moving around much better than I have been. Pulling myself up is still tough. Not painful, just tough. Again, no muscles there. You don’t realize how much you use those ab muscles until they’re not there. Its 9 now so I plan to watch some TV and get to bed soon. I’m feeling tired so hopefully tonight won’t be a repeat of last night. Tomorrow is my last day of lounging before I attempt to get back to work. Getting up and out will be a good step in the direction of getting stronger!

Until next time, thanks for keeping up and I’ll be back soon!

Saturday March 14th, 2015 – Monday March 23rd, 2015

I wake up at about 9. I’m not sure how I even willed myself to sleep with the amount of pain I was in from the headache. I call my mom and tell her I need her to come and take me to the hospital. Here’s the catch: My GI doctor is in Wilmington. Wilmington is two hours from Myrtle Beach. My parents are smack in the middle of Wilmington and Myrtle. My mom wanted to take me to Wilmington because my doctor is there but I was hesitant because it was so far. We argued via text, as I waited for her to arrive, about whether or not I could even make it the whole 2 hour drive to the hospital. In the end, we went to Wilmington.

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